The internet scared me in so many ways! I could not find one story where a child with my daughter's potential diagnosis came out OK. I feel and hurt for those families whose child has suffered, and in turn, whose families have hurt. I thought there was no way Kennedy would have a normal life. How could Dr. Fuchs steer me wrong?
This blog is to show other families that hope is out there. Since the time I started it, I have been contacted by four families about to endure the same surgery and each one has thanked me for the relief my blog has shared. These contacts have been some of the most meaningful contacts I have ever made. I want to wish their babies/children a healthy and happy future.
Today, Kennedy is almost 13 months old. She is walking, saying several words and occasional phrases, imitating us regularly, dancing to every hip/hop or rap beat she can find, kissing her Elmo and babydoll, talking on Skype to her grandparents, and living a completely normal life. We are reminded of her events only by the scar on her back when exposed during diaper changes and bathtime.