As I sit by the beach on this beautiful morning, remembering where we were last year for Easter is not far from mind. Last Easter, our little family spent much of the holiday at Duke Children's Hospital following spinal cord surgery. I remember feeling much joy that my daughter was being discharged from the hospital but I also remembering a lot of fear to take my fragile daughter home with this massive wound on her back. I was afraid to hold her, let anyone else hold her, and even to lay her down for a nap.
Today she's swimming, jumping, and following her cousins around as fast as she can. My heart and prayers are with all the families at Duke this Easter. We send our best wishes that tomorrow will be better.
To Kennedy's Mommy-
ReplyDeleteI just found your blog online and I am writing to you, first to say THANK YOU for sharing your story and to tell you that I am going to be thinking of you and praying for your family and your baby girl from this day on. My brother and his wife just learned their 3 week old baby boy might have this same "tethered cord" thing...I have no idea what it is, and they can't seem to explain it to me...so I went online and your blog came up. I am so sad/scared/afraid/ for them as they are new parents and I am upset/angry/frustrated that this is happening to them (all the same emotions I suspect anyone would feel). I want to be there for them, as they await an MRI- which is scheduled for November. I guess he has to be 3 months old for the MRI. I have tears in my eyes thinking of my little nephew and don't want him (or them) to go through this....at the same time, I am soooo grateful to you and your story and your message of hope and positiveness...in a situation that can feel just so overwhelming and scary. I just wanted to reach out to you and say THANK YOU- and will now follow your blog for any new updates. Lots of love to you and your precious and perfect baby girl...she is just a doll
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