We are so happy to have our precious little girl home. We got home late Sunday afternoon and are SO much more comfortable now. We were instructed to change her bandage after 2 days, which was yesterday. After that, we are to change it every 5 days and then leave it open to the air for good. Her scar seems HUGE - 4 inches approximately and UGLY but our dear nurse mothers say it looks good, properly healing.
It's truly amazing how quickly she is recovering and I want other TCS parents to be prepared how quickly it happens and how utterly amazing it is. She is not herself 100% yet. She is more shy around strangers than she used to be, cries out in pain when she moves in certain ways, and is no longer walking independently; however, we've only been home for 3 days! It's coming fast and she'll be just fine before we know it.
As for now, home directions include dressing changes, no soaking (bath or pool) for 2 weeks, no shower for first 2 days, no lifting more than 5 lbs (hahahaha) and no strenuous activity. She is loving her Nana & Papa (saying both now) and the ice cream and tickles that come with them.
Thank you for all of the well wishes and prayers. We have our first follow-up appt at Duke with Dr. Fuchs next Tues (May 3rd). We'll keep you updated! Sorry for the delay, I've been busy catching up on baby snuggles!